Tag Archive | autism

Good Things Coming Your Way

Good Things coming your way.

As some of you know, I am the beneficiary of ARC’s from Kensington Books. In return for these, I give good blog on those deserving of such LOL. There are a few coming out in March and April that I want to make sure you’re on the look-out for. And as always, my creed still stands: If I don’t like it, I won’t read it all the way through and will not pass on to you. ALL the books on this blog have been read & enjoyed by yours truly.

 

Curses (A F****ed- Up Fairy Tale), By J.A. Kazimer, Kensington Books. (PUBLISHED IN MARCH) This book skirts the edge of amusing and annoying in a good way. Take a fairy tale, tell it from the point of view of a cursed villain, shake well and there you have it. Written in the style of a hard-boiled P.I. story, with the subject matter at hand, it just cracked me up to no end.

 

Words Get In The Way, By Nan Rossiter, Kensington Books (COMING IN APRIL 2012) This book was a sweet read, but the thing that first intrigued me was that here was a single mother raising an autistic child. My Princeling doesn’t have autism, but there are some similarities in the symptoms. Like Auditory Sensory Integration Disorder. I have to admit I came unglued when Callie (the heroine)  took her 3 year old son to go view fire words.

For those of you who aren’t familiar with it, Auditory Sensory Integration Disorder does not bode well for fireworks. I was sooo angry on behalf of this fictional child. Why on earth would she do that? The kid is three years old, she’s been dealing with her son’s issues…. Well. Take a deep breath. Everyone’s journey in mother-hood is different. There’s also a wealth of difference between a mother that is twenty something (Callie) and forty something (me). But the scene where she begs the question, “Why can’t you just be normal??!!” Wow, that one hit home.

As an aside, every once in a while, like standing in line at Walmart and Ray catches me trying to pull a fast one on him… I’ll ask him “What happened to that poor, deaf, retarded boy I was supposed to have?” (And yes, those words were actually used by a school to me about my son). “You don’t have him, Mommy, you have me and I’m smart.” Well yes, you are. (I quit doing that when the lady behind me almost choked on her gum. Not sure if she was angry with me or laughing… I choose laughing).

There needs to be more books like this one. Books that brings the plight of kids that are different, and their parents, into the homes of others. I think I’ll do one on dyspraxia, as it’s already figuring in my candy garden story.

 

Buried in Buttercream, A Savannah Reid Mystery, by G.A. McKevett (COMING IN APRIL 2012). This one  is funny and well-paced. All poor Savannah wants is to get married, dang it. So why are arsonists, murders and natural disasters raining on her parade? Add in the eclectic mix of her large extended family in town for the wedding, and staying in her itty bitty house… And you have a book that rocks along nicely. It has a nice balance of every day stuff (body image, family rants) against the mystery. I finished this book before I knew it, zipped right along. And that, my dear friends, is a very good thing.

Hope you all enjoy as much as I did!

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Navigation & Living Large

What does living large mean? What should it mean? I know most see it as having & spending tons of money. Going out and doing things in a big way. But what if it meant something else? Something more personal, more meaninful? What if it actually meant something?

I started this blog because I firmly believe that I have a calling to write. Still believe it, but I’ve moced off the path a little (blog wise, that is). I haven’t been paying attention to what means something to me, what matters most.

In watching some of my shows lately, i’ve been bludgeoned with the thought: What are you waiting for? What will it take for you to step up and live your life? Do what you’re passionate about? If your passion/calling/talent isn’t being used…. then find another way.

For a long time, this was my other way. I wrote about things that really mattered to me here. Deeply. Not so much, lately, though.

So how can I live large and fulfill what I’m here to do?

1. Go to God. Pray. Really, there’s no living large without Him, so why not have the Master Navigator charting my course?

2. Write about things I’m passionate about, not something I feel i should write. Whether in the blog, journal, fiction, poetry… no matter. Just write about something with meaning to me.

3. Carve out time for me, where I’m not sick or just watching tv.

4. Try to walk with Him everyday, in Every Way. That’s the only way to really and truly live large.

There are things that I’m passionate about that need to find their way back onto these pages. Some of them have made appearances, some need to be brought out into the light of day. With my Navigator by my side, I’ll know where to go, when to avoid the rocks.

Buckle up. It’s gonna be a fun ride.

My Kid’s NOT Autistic

Dear teacher’s and case managers and everyone else:

I appreciate that you’re just trying to help. I really do. But for some reason, you keep trying to put my son into the category of being “autistic”.

Tip-toe walking, a bit of drool and language delays do not necessarily autistic make.

I freely admit that he needs help, that there is a delay and something is wrong. HOWEVER, he’s not autistic. And the more you keep trying to test for it, going to bigger and bigger testing facilities, the more I wonder… Are you so ill equipped that you can’t help a child that *doesn’t* fit into your neat little molds?

I walked on my tippy tip toes. My mom solved that by throwing me into heavy buckle up past my ankles walking shoes. I never did that with Ray. He doesn’t talk much, he does have a language delay.  But I always thought that autism presented as a child loosing language– Ray has never had it. Yes, he throws fits. Bites and hits. He’s 2. It happens. And yes, he drools. A lot. I’ve met large, drooly dogs that drool less than him. And as for his being clumsy… I hate to tell you this, but that’s a family trait that he got from me. My sister. Countless other children in our family have the same “affliction”. As for pointing to objects, you might not have seen it yet but trust me– he does. You should see him on a quest for cookies or chips.

Yes, I know he presents a puzzle. But I’m hoping, praying, BEGGING you to see the beauty of this puzzle. He’s bright. He remembers things. He loves people– I wish you could see him zooming through the church, hugging all the people. Who, by the way, don’t mind being slimed by his drool. They love him right back.

He loves music, and dancing. There are morning when he wakes up dancing. He loves to explore new frontiers, and DH and I have a heck of a time keeping up with him as he tries to learn the world one tree at a time.

He hugs trees. Picks flowers. When he tries to smell them, he scrunches up his nose and makes a blowing noise like he’s, well, blowing his nose. Bubbles captivate him. Cars and balls are his favorite toys. I remember bringing him home from a large toy store, and he clutched his new truck all the way home, then all the way into the house. At the time, it was almost as big as he was.  He can sit and watch a movie, and he knows exactly which one is which by looking at the pictures on the case. He loves the digital camera, and (by accident) taken some really good pictures.

SO please, please, PLEASE…. Test him all you want. But know that he isn’t going to fit into your mold of what he should be. He is, simply, the Little Ray of Sunshine that has brought a miracle into our lives.

Let him spread a bit of it in yours, too, OK? That’s all I’m asking.

Thank you,

Ray’s Mom